Euthanasia for Severely Disabled Babies (Finally) November 5
Apparently in Scotland senior doctors are urging health professionals to consider (meant literally not just a synonym for approve) allowing the active euthanasia of severely disabled babies.
Well it’s about time. These aren’t people missing a limb or ‘merely’ severely retarded and deformed. They appear to be talking only about babies with horrible incurable conditions that will create years of pain and have a very low change of survival. Frankly as long as we are talking about these cases it really is a no brainer.
The situation these babies find themselves in is effectively that of an individual with a terminal illness who losses all mental facilities including speech and any understanding of the outside world and is doomed to suffer a year of excruciating pain before death. Given such a grim diagnosis I suspect that but for the influence of religious/cultural prohibitions nearly all of us would choose an early death. Moreover, unlike a grown individual the child does not yet have fully formed personality, goals, dreams, achievements, a lifetime of memories or a web of personal relations that (help) make us so desperate to hang on to life.
Of course the standard objections are heard from disabled rights groups
Simone Aspis of The British Council of Disabled People:
Euthanasia for disabled newborns tells society that being born disabled is a bad thing. If we introduced euthanasia for certain conditions, it would tell adults with those conditions that they are worth less than other members of society.
Wait this tells society that being born disabled is a bad thing? Ohh fuck, we couldn’t have people believing it would be better to be born without disabilities than with them. I mean then they might go out and do something horrible like trying to increase prenatal care or give women vitamins. Even if some people hold the ridiculous view that it isn’t worse to be born disabled I don’t think anyone is going to volunteer for the option of pervasive severe pain followed by an early death.
So let’s look at the second claim that this would tell society that adults with these conditions were worth less than other members of society. We can already see it deeply mistaken. We would be doing for the babies the same as we would do for ourselves. In fact it would be forcing these children to endure pointless suffering to assuage our moral sentiments that would show a disregard for the disabled.
But even when applied to less extreme situations, say aborting a child whom ultrasound shows to be missing limbs, this argument is simply fallacious. As Van Gogh and many others illustrate living an enjoyable life and being valued by society are very different concepts. Additionally someone’s worth to society just doesn’t have much to do with whether they deserve dignity, respect and decent treatment. Obviously everyone isn’t above average and some people are worth less to society than others but this has little to do with whether we think they ought to be denied equal treatment, denied basic human dignity or even if we would be friends with them.
Ultimately this argument proves far too much. If euthanasia for the severely disabled tells society that being disabled is a bad thing why don’t programs to end teenage pregnancy tell us being a teenage pregnancy is a bad thing? If this program would tell adults with these conditions that they were worth less than other members of society why don’t teenage pregnancy prevention programs tell adults born to teenage mothers they are worth less than other parts of society?
In addition to the standard arguments from the disabled community we also have the boilerplate concern about the role of doctors.
But the paper quoted John Wyatt, consultant neonatologist at University College Hospital, as saying: “Intentional killing is not part of medical care… once you introduce the possibility of intentional killing you change the fundamental nature of medicine. It becomes a subjective decision of whose life is worthwhile.”
This argument is not just wrong it is downright harmful. The fundamental nature of medicine is not about saving life it is about improving the quality of life. Every time a doctor treats acne, makes surgery a bit more complex to avoid leaving a scar, prescribes ADD or anti-anxiety medication, gives a woman who had a mastectomy an implant or administers painkillers they are improving quality of life at the expense of possible side effects. Making trade offs between life and quality of life IS the essence of medicine.
So yes when the patient cannot speak for themselves it is necessary to make a subjective decision about whether their life is worth living. We are doing it right now and it is infinitely better to face this fact than letting people suffer so we can pretend to avoid the question.
Ultimately I think we ought to go far beyond this proposal. I think we ought to mandate abortion for all fetuses discovered to have birth defects. By mandating abortion we would minimize the moral pain associated with making the decision and I don’t think there is any question that aborting a fetus is less bad than going and making someone disabled (say by poisoning babies). Once we’ve bit the bullet on abortion and agreed it isn’t murder we should be prepared to treat it as such. If people knew they could use birth control for a month and reduce their chance of birth defects a hundred fold they wouldn’t hesitate so how is aborting the defective fetuses any different? I might even favor euthanasia for severely retarded children or those with extreme physical deformities inflicting severe suffering even if non-terminal.